Privacy Policy

This Privacy Policy will help you understand what information we collect, why we collect it and what we do with it. You can use the drop-down boxes below to find out more about how your information is used.


Who we are 

MyDESMOND® is a service that has been created by the Leicester Diabetes Centre, for organisations licenced to the DESMOND National Programme. The Leicester Diabetes Centre is part of the University Hospitals of Leicester NHS Trust. You can find out how to contact us by visiting


Why we need information from you

We hope that by using MyDESMOND® you will be better able to understand and manage your Type 2 diabetes. The e-learning section of MyDESMOND allows you to learn more about Type 2 diabetes through a range of interactive sessions, and the self-management trackers allow you to update, track and manage a range of health-related measures (e.g. blood pressure & cholesterol), as well as activity and diet levels. The action plan section of MyDESMOND® allows you to create and review plans for lifestyle changes relevant to you. You can input information about your goals and get emails to remind you of your progress.


We need information from you in order to personalise these services for you. This includes information about age, ethnicity, and other risk factors associated with Type 2 diabetes. If you do not provide this information, this will reduce the accuracy and relevance of the content on MyDESMOND®.


The information that we collect about you

Your local DESMOND Organisation will receive your details from your GP or Practice Nurse in order to invite you to use the MyDESMOND® website.


We then collect two kinds of information once you start using MyDESMOND®:

  • Information you give us:
    • You give us information by registering, logging in to, and using the MyDESMOND® site, by filling in and updating forms on MyDESMOND® and responding to questions. The information you give us may include your name, address, e-mail address, phone number, ethnicity and date of birth, as well as information about your health and wellbeing. We use this information to provide the personalised MyDESMOND® service to you.


  • Information we gain through how you use the site (cookies).
    • Cookies are small files placed on your computer that collect standard internet log information and visitor behaviour. We use this information to track visitor use of the website and compile statistical reports on activity. You can find out more on the MyDESMOND® cookies page, or by visiting You can set your web-browser not to accept cookies, but this might impact on some of the features of the website.


What we do – and don’t do – with information about you

We will:

  • store the information you provide so that you can continue to access and make use of the MyDESMOND® website;
  • provide access to an administration area of the website for your local DESMOND Organisation to download/extract your name, date of birth, practice and NHS number
  • Advise your local DESMOND Organisation to ensure they abide by all NHS standards for handling identifiable information
  • Advise your local DESMOND Organisation to use the extracted data to match against your routine care records (this will include HbA1c/blood glucose levels)
  • Be sent an anonymous and password-protected version of the matched data from each local DESMOND Organisation, which will be analysed for audit purposes and stored in accordance with NHS standards for record handling


We may:

use the anonymous information your local DESMOND Organisation give us as part of internal clinical audit, to measure or understand the effectiveness of the MyDESMOND® service that we offer to you and others;

  • use the information you give us as part of the administration of MyDESMOND® and for internal operations, such as troubleshooting, so as to improve our site and ensure that content is presented in the most effective manner for you and others using MyDESMOND®;
  • ask you from time to time about your experience in using MyDESMOND®;
  • need to share information with you as part of our legal compliance obligations: for instance, the Care Quality Commission inspects the Trust and can ask to see the information we hold.


We don’t:

  • share information with other users of the website– there are ‘characters’ who form part of your MyDESMOND® group, but these are not real people.
  • share the information you give us with commercial organisations.


Keeping your information up to date

It’s really important that the information you give us is kept up-to-date, so that you can monitor your progress yourself and so that those with an interest in your health, such as your GP, can find out how you are getting on. You can keep your information up-to-date:

  • by changing your information on your MyDESMOND® account page – click on the link on the top right of any page - , and
  • on the specific information you provide on, for instance, your BMI, blood glucose, and activity logs – click on the dashboard on the top left of any page.



How long we keep your information for, and when you stop using MyDESMOND®

We keep information on your account for 24 months if the account remains active. If the account is deactivated or unused all information is archived after six months, and permanently deleted after 24 months. This is so that we meet our compliance obligations, and in case you want to use the service again in the future. You can find out more about the retention periods for healthcare related information in the NHS Records Management Code of Practice, available via


Keeping your information safe and secure

We use a range of security measures and processes to keep your information safe and secure, such as:

  • password login;
  • encryption on our website;
  • carrying out regular privacy impact assessments
  • training for staff on information security and data protection;
  • restricting the number of staff that can see identifiable information you provide to the website, only to those that need to know or see the information in order to do their jobs.

Our servers are based in the UK and your information is not stored overseas.


You can find out more about how the NHS keeps online information safe, and what you can do to help with this, by reading the guidance note at


Changes to this policy

Any changes we may make to this privacy policy in the future will be posted on this page and, where appropriate, notified to you by e-mail. Please check back frequently to see any updates or changes to our privacy policy. This page was last updated on 21/06/2016.


How to contact us

You can contact us by emailing with any questions or concerns. You also have a right to access the information we hold about you. We may make a small charge for this service.


You can also use the ‘feedback’ button on every page to email us with comments about the site.